Celine Dion’s older sister Claudette has given an update on the singer’s debilitating experiences with the neurological dysfunction referred to as stiff individual syndrome (SPS).
“She’s working hard, but she doesn’t have control over her muscles,” Claudette Dion informed Canada’s 7 Jours, per the Daily Mail. “What breaks my heart is that she’s always been disciplined. She’s always worked hard. Our mother always told her, ‘You’re going to do it well, you’re going to do it properly.’”
Last December, the 55-year-old “My Heart Will Go On” singer shared that she had been recognized with the incurable neurological situation, and was cancelling her forthcoming tour dates.
Then in May, Dion was compelled to tug the remaining dates of her world tour. The Canadian musician mentioned that she was “working really hard to build back my strength”.
She added: “I’m so sorry to disappoint all of you once again. It’s not fair to you to keep postponing the shows, and even though it breaks my heart, it’s best that we cancel everything now until I’m really ready to be back on stage again.”
However, within the new interview, Dion’s sister performed down the potential of her returning to full-scale touring. “It’s true that in both our dreams and hers, the goal is to return to the stage,” she mentioned. “In what capacity? I don’t know.”
Claudette Dion added that the rarity of the situation means there was scant analysis right into a treatment: “The vocal cords are muscles, and the heart is also a muscle. This is what comes to get me. Because it’s one out of a million case, the scientists haven’t done that much research because it didn’t affect that many people.”
She added that, nonetheless, Celine and her household stay hopeful: “Some people have lost hope because it’s an illness that isn’t well known. If only you knew the number of phone calls the Foundation gets about Celine! People tell us they love her and they’re praying for her. She gets so many messages, presents and blessed crucifixes.”
SPS is an autoimmune and neurological dysfunction that causes rigidity within the torso and limbs. Symptoms additionally embrace muscle spasms, which have affected Dion’s potential to sing and carry out, and will be triggered by environmental stimuli (like loud noises) or emotional stress.
Find additional details about Stiff Person Syndrome right here.
Discussion about this post